Melanie K.
Sion, M.D.
Fellow in
Surgical Critical Care at Brigham & Women’s Hospital
PGY-8
Surgical Care in Malawi
Working in this resource-poor environment at a teaching
hospital in Malawi has been the inspiration for my career but it can be an
extremely frustrating experience to me.
Sometimes that is because of the challenging working conditions or
because of the limited medical capabilities.
At this moment for me it is more because of the pathology, the poor
comprehension by many patients about their conditions, and the chronic problem
of inadequate communication between patients and clinicians. While these are universal problems in
healthcare, in Malawi these problems are worse.
I spent a year here as a resident in 2013 and have been returning twice
annually to maintain my relationships with the clinicians here, to prevent myself
from losing touch with this reality, and to contribute clinical time here in
this extremely understaffed hospital. My
project for this trip is an assessment of the Emergency Room area, however,
because of staffing issues there is a fair amount of clinical work I’ve been
asked to assist with for this two-week time period. This morning I made rounds on both the Male
and Female Surgical Wards with a 4th year resident, 2nd
year resident, and three medical students.
We saw approximately 60 patients with various conditions: some were
post-op patients, some were trauma patients, some were patients with wounds
from soft tissue infections too large to be cared for as outpatients, along
with a mix of malignancies and other illnesses.
These rounds do have some similarities to home and feel
slightly like rounding as the acute care surgeon of the week where I did my
residency. The residents are introducing
me to the patients, describing their hospital course, and I am a fresh set of
eyes. I feel that some patients are on
track, i.e. admitted for an appropriate reason, receiving timely and
appropriate care, progressing towards an eventual recovery and I expect them to
have a timely discharge. However, what
struck me as so frustrating today more than ever, was the number of patients
admitted with liver cirrhosis and late stage malignancies. Of course this is not different than in the
past, but for some reason I’ve noticed more this time.
I’ve come to understand that cirrhosis is incredibly common
in Malawi because it is caused by endemic infectious diseases such as
schistosomiasis as well as Hepatitis B.
Of the patients I saw today, about 8 were relatively young in their
third, fourth, or fifth decades of life, however all were unfortunately
suffering from sequelae of cirrhosis.
These patients have presented to the hospital because they have liters
of ascites in their abdomen or are experiencing recurrent episodes of
hematemesis due to portal hypertension and variceal bleeding. Some of these patients have traveled up to 4
hours by mini-bus to reach the central hospital at a price that is incredibly
high to them and are admitted to the wards hoping for treatment. The difficulty with this is that cirrhosis is
a challenge to treat anywhere in the world and in a place that is so
resource-poor, the condition makes me feel particularly helpless. Some of these patients will wait days if not
weeks for endoscopy to treat their bleeding varices and many will leave because
they see futility in such long waiting periods or the endoscopist runs out of
ligating bands. Even if patients are
given available medications such as diuretics and beta blockers, I can’t
imagine this makes an resilient impact beyond perhaps mild improvement in an
inpatient setting.
The part that saddens and frustrates me that most is that
the patients come here to the central hospital with hope. It seems they are admitted with hope that
resolution is a possibility and then they wait for exceedingly long amounts of
time and most frequently leave with frustration, anger, sorrow, or a total lack
of understanding regarding their condition.
I know the Malawian clinicians feel a similar degree of hopelessness and
frustration that I do with this problem, however I think they are chronically
faced with this reality and they must conserve their outrage for things that
they will affect greater change.
A surgeon here once told me to try to learn how to do a TIPS
procedure and said I should bring the skill to Malawi. I would at least like to work towards a
better understanding of the problem of cirrhosis in Malawi and come up with
realistic guidelines for clinicians as well as patients for how best to
diagnose the etiology, setting-appropriate treatment regimens, and culturally
sensitive communication talking points.
This would take time and careful observation and communication with a
cohort of patients to understand their environment and their access to local
services as well as follow up at the central hospital but this trip has
inspired this new goal I hope to work on over time.
On a more optimistic note, I’m a surgeon, not a hepatologist
and I decided to take a patient to the operating room with a tumor that others
thought was too large to remove. I saw
the patient on rounds and palpated a massive tumor in the left upper quadrant
that was too large to assess for mobility.
I reviewed his images and felt that in fact the tumor was well
circumscribed and resectable. The patient
was lucky because he had a CT scan performed two months prior when the CT
scanner was working, for now it had been broken for weeks and not going to be
fixed in the foreseeable future and I don’t think anyone would take a palpable
tumor that large to the operating room without a CT scan, even in this
environment. The CT image and image of
the surgical resident holding the extracted tumor are attached photos. I’m particularly proud of this case because
I’m not sure the case would have otherwise been pursued and I’m glad I was able
to provide this service to that patient.
(At
the time of this submission, I’ve learned that the tumor on Pathology report
was indeed a GIST tumor, the patient was discharged uneventfully, has followed
up in clinic and is found to be doing well and without complication.)
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