Week 2
You can count the number of doctors in the town of San Lucas
Tolimán on one hand, serving a population of approximately 35,000 people. At
the Hospital Parrochia, there is one dedicated Dr. Tun, who remains on call 24
hours a day, 7 days a week, attending to emergency cases during evenings and
weekends in his “down time.” Two nursing assistants remain in the hospital at
all times, calling in Dr. Tun when cases become complicated. The nursing
assistants are trained in many tasks, including placing IVs, cleaning and
suturing wounds, and performing uncomplicated deliveries, including repairing lacerations as needed.
The community health promoter program was established at
least 10 years ago, with the assistance of a nurse Sue from the United States who
lived in Guatemala for many years and designed the program based on an existing
program run by a non-profit organization in the Petén region of the country. There are
currently at least 24 promoters from at least 16 communities around San Lucas
Tolimán. A few head promoters are paid through the Parrochia, receiving the
equivalent of a little over US$300 a month. The remainder of the promoters are
only paid if they participate in a nutrition and weighing project run by Dr.
Paul Wise from Stanford. For each nutrition and weighing activity that a
promoter takes part in, she receives about US$8. The large majority of
promoters are women, with about 5 male promoters, including the head promoter
Vicente, who was trained as a nurse.
There is only so much that one can do in a week, so our
activities were guided by the hope of validating the work already being done,
providing constructive feedback, and offering some additional training
for the current health promoters.
Our first two days were spent observing and learning about
the work being done in the communities, with each promoter coordinating and
leading a weighing session for all the children in each community at least once
every two months, plotting weight and height on growth charts, and providing
additional support to children who fall off the curve. These children will
receive incaparina (a nutritious supplement) as well as periodic visits from
the health promoters in their home to see if the supplement is being used and
if the child is gaining weight. Unfortunately, for many of the children who
fall off the curve, their malnutrition is indicative of larger problems of extreme
poverty, and many times the supplement is split among other family members who
are hungry, thus making it difficult for the child to get the nutrition that he
or she needs.
Other activities of the health promoters include periodic charlas, or educational talks, to
community members, as well as the informal education that occurs in and around
homes, among friends, among family members, and with others who may be curious
or misinformed. During our time, we observed the health promoters working with
community members to make shampoo out of natural ingredients, including a plant
called escobilla and another called sabila (aka Aloe), with the key
ingredient being an emulsifier called texapón
that comes from the capital, as well as salt and a perfume. Shampoo is a public health intervention here because otherwise community members will resort to
using an irritating detergent soap for their hair, causing seborrheic dermatitis
and other problems.
Another day, we visited the health promoter Cesia as she and
Vicente were giving talks about preventing accidents for kids at the local
public school. Both Vicente and Cesia had a wonderful style with the students
and quickly incorporated feedback that we offered into their work. For example,
they incorporated teaching techniques of asking students to draw from personal
experiences in order to understand and remember the material better, and they
utilized visual demonstrations about how to carry scissors and other sharp
objects. At the end of the lesson, we were invited to the front of the class to
offer a lesson in proper hand washing and technique, with demonstrations and
lots of singing of “Happy Birthday.”
Before our arrival, Vicente had suggested that the promoters would benefit from additional training in diabetes, so I had prepared a presentation with the basics of diabetes education – what diabetes means, how to recognize and test for diabetes, who to test for diabetes, and fundamentals of treatment for diabetes, which here primarily consists of metformin and glibenclamida (glyburide), in addition to lifestyle changes.
It was interesting to give this presentation to two different groups of promoters – initially to the more experienced promoters (those who had been around since the start of the program and generally were older), then to the new group of promoters, who were recruited into the program over the last year. There was a marked difference between the two groups of promoters, which seemed to be related to the higher educational attainment of the younger group of promoters. While many of the older promoters struggled to read and write, literacy was a requirement for the younger group, and many had completed secondary school and were hoping to attain higher education. Consequently, the younger group seemed more engaged, participated more actively, took notes, understood the process of a role play, and gave feedback. The highlights of the training sessions were practicing with glucometers and engaging the promoters in role play activities, including modeling how to interview a patient. What was more difficult but valuable was teaching the promoters how to measure BMI and subsequently diagnosing several obese patients and many overweight patients, as well as finding a couple cases of uncontrolled diabetes among the promoters.
Friday was our day of consultas
in a community more removed from San Lucas Tolimán, with very limited access to
any reliable medical resources. Here we worked with the new group of promoters
to see patients of all ages, with common complaints of chronic cough (?TB,
?inflammatory changes from chronic exposure to indoor fires, ?PNA), diarrhea and
abdominal pain (?giardia, ?gastritis, ?worms), malnutrition, cataracts, poor
dentition with cavities and infections, rashes, lacerations, and skin and soft tissue infections. We had basic antibiotic treatments,
antiparasitics, some simple topical medications, vitamins, analgesics, and a few inhalers. We carried
a few pregnancy tests, which were well used, as well as glucometers and point
of care hemoglobin test strips. We could have used additional materials for basic wound care and probing, spacers for use with inhalers, additional topical corticosteriods, as well as antibiotic formulations that were more age appropriate (ie: tablets for adults, suspensions for kids). We
purposely left behind medications for chronic medical problems, as the follow
up and future access to these medications for these patients would be very
limited. Consultas (aka medical missions) are often unsatisfying, as they are only touching the surface of the needs of a community. Nevertheless, doing the consultas with the promoters was a great way to make a training experience out of what otherwise may sometimes feel futile.
Saturday we observed and assisted in the diabetes clinic at the Hospital Parrochia,
run entirely by the head promoter Vicente. The diabetes clinic is
only open on Saturday mornings, with each patient visiting the clinic once a month, for a blood pressure check, weight, and fasting blood glucose
check. The only medications available are metformin and glyburide, which are
given in a one month supply at a cost of Q15 and Q10 for the visit. Vicente is
fairly well trained in diabetes education, so provides a valuable service to
the patients, although his grasp of medication management remains limited. Luckily, Dr. Tun is always only a phone call away, and usually within 10 minutes of the hospital.
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What I have learned about successful community health worker
programs is fairly simple and intuitive, but nonetheless often difficult to
achieve and the tendency to cut corners when working with limited funds and
pressing community needs is great. Nevertheless, with foresight, careful planning,
and defining a realistic scope of work appropriate for the funds available, these
programs can both empower and improve the lives of individuals in extremely
resource limited settings.
Lesson #1 – Recruit
for attitude, train to skill; however, a basic initial skill set is very
valuable.
During our time in San Lucas Tolimán, we met with several
amazing promoters whose dynamic nature and optimistic attitude would be
difficult, if not impossible, to teach. These women asked the right questions,
took their work seriously, displayed great compassion, and established
immediate rapport with patients. They were hard working and not motivated
primarily by external incentives of monetary reward or privileged status. These
campeonas are crucial for any program
to move forward, to overcome challenges, and to set the tone for the work of
the group. Nevertheless, a good education cannot be underestimated. The stark
difference between the young group of promoters (less experienced but better
educated) and the older promoters speaks to the process of learning how to
learn, how to process information, how to ask questions, how to record
information learned for future review. These subtle skills make all the
difference. Literacy at the very least is a reasonable pre-requisite for
recruiting promoters.
Lesson #2 – Planned
(and scheduled) follow up of patients is key.
The key advantage of community health promoters is that they
are located in the communities where outreach is needed, that they come from
these communities and thus are in a prime position to provide close follow up
and compassionate, culturally appropriate seguimiento.
However, follow up needs to be planned and expected within the scope of the
project and the responsibilities of the promoters. Follow up should be
scheduled.
Lesson #3 – The scope
of the promoters’ responsibilities must be limited and defined, with clear referral mechanisms to a higher level of care as needed.
In order to provide adequate follow up and to offer high
quality care, the scope of community health promoters must be limited to what
they are adequately trained and equipped to manage. It is not reasonable to
expect promoters to be a substitute for doctors, and a system should be set up
whereby promoters can refer cases to the doctor when warning signs are noted or
cases are unclear or complicated. The best run promoter programs seem to be the
ones that focus on one particular health need and do it well. For example, the
Paul Wise nutrition program has trained the promoters to recognize,
diagnose, treat, and refer patients with severe malnutrition. Periodic
weighings, feedings, and other educational activities are scheduled every month. Another program through the University of Virginia has focused on installing water filters in homes and
providing public health education to the recipients of each filter, and seems also
to be very successful. The scope of the project is very limited (providing
safe and durable water filters), expectations of promoters and of clients have
been set (every recipient of a filter must attend 20 one-hour educational
sessions with the promoter about various health topics before they receive their filter), and close follow up has been scheduled (each
filter recipient receives periodic home visits to see how the filter is working
and troubleshoot any problems). After a few years in each community, the
project moves on to another community, leaving behind the lasting effect of
purified water and a population more educated about their health.
Lesson #4 – Incentives
can make or break a program, but transparency is key.
Asking people to work without pay is not sustainable, not for individuals or for programs. Nevertheless, promoters are not immune from nepotism and corruption, so transparency of funds is important. If promoters are to be reliable, if they are to be “on call” and available at short notice, they should be compensated regularly, equal to the amount of work required of the job. Compensation should be fair, transparent, and consistent. Thus, a steady and reliable stream of funding is also key.
Asking people to work without pay is not sustainable, not for individuals or for programs. Nevertheless, promoters are not immune from nepotism and corruption, so transparency of funds is important. If promoters are to be reliable, if they are to be “on call” and available at short notice, they should be compensated regularly, equal to the amount of work required of the job. Compensation should be fair, transparent, and consistent. Thus, a steady and reliable stream of funding is also key.
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